tag:blogger.com,1999:blog-769437744086749047.post3873693116893006353..comments2015-11-15T20:44:00.801+00:00Comments on Penny's Points: Progression? Bah humbugAnonymoushttp://www.blogger.com/profile/08105838620909892076noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-769437744086749047.post-76504616394894526802012-09-28T08:34:48.651+01:002012-09-28T08:34:48.651+01:00Thank you all for such kind and understanding comm...Thank you all for such kind and understanding comments and Robert I don't need you to make me feel better, I am so very pleased that you feel you can share your feelings and fears with me, it makes me stronger knowing that I don't go through this alone. If this blog reaches out to just one other person that feels the same way then it is doing what I set out to do, if it informs one other person what life is like for us then it is doing what I hoped it would.<br />Robert life hasn't and isn't being fair to us my friend but like you I am buggered if it will beat me. XxxAnonymoushttps://www.blogger.com/profile/08105838620909892076noreply@blogger.comtag:blogger.com,1999:blog-769437744086749047.post-77816678347827437502012-09-28T08:24:09.347+01:002012-09-28T08:24:09.347+01:00Hi Penny,
I feel almost exactly the same as you,...Hi Penny, <br /><br />I feel almost exactly the same as you, reading it, and seeing it, out in front of me in your blog has made me burst into tears, something I haven't done for a very very long time. But crying is something I have needed to do, as everyone keeps telling me "just let it out".<br /><br />In fact since I started crying twenty minutes ago I am still struggling to hold back the tears now. So I apologise that this comment is not going to be anything poetic or intelligent or helpful, I just thought I'd reply to tell you that I feel the same, I'm scared though if I'm honest, that's how realising all of the horrible things that we go through makes me feel, scared. Scared because if this is how I feel when I actually let myself 'feel', then how do I move on and accept, how can I/you accept something that not only do we not want but we can't stop. We can't just say "I've had enough now, can you please take the pain away and let me resume my old life". Anyone reading this will probably be thinking, you have to adapt and accept otherwise you'll never move on.<br /><br />Going to sound like a spoilt child/teenager but I don't want to accept and move on. I want to get better and not be like this. I always thought I could handle any challenge life through at me, but I don't think anyone could truly handle being in pain, disabled by pain, being alone all day, having a mind that no longer functions like it once did due to side effects, and all the other side effects our medication causes us.<br /><br />I am sorry that I'm replying without being in anyway helpful, I don't know the answer either. But now for my best trick to get away from the sadness...distraction...<br /><br />I didn't know you are a Dr of Psychology, I have a degree in Psychology. I had planned to do a masters straight after graduating, but unfortunately this all started just after, 3 months after I had finished studying, 3 months after I turned 21, just as my adult life was about to start. I hate, with such a passion, what has happened to me, I go through it almost everyday in my mind, 'why me?', what did I do to deserve this, how in this day and age can the medical world be so completely useless on this, and many other conditions.<br /><br />Hopefully having this cry and moan will help with the acceptance we need to face. Once again I'm sorry I haven't been of any use, hope you find maybe some comfort in knowing that you aren't alone, although I'm not sure how much that will help. <br /><br />Anyway I best put on a brave front/face and get onto twitter and the website to join people together, I hope nobody ever thinks that I am some kind of 'leader' type figure running Chronic Relief, because I'm really not, I'm exactly the same as everyone else, suffering, looking for support.<br /><br />I truly hope your day improves and that others can be more useful than I.<br /><br />xxx<br /><br /><br /><br /><br />Anonymoushttps://www.blogger.com/profile/11879824398790569134noreply@blogger.comtag:blogger.com,1999:blog-769437744086749047.post-1381094375640397482012-09-28T00:09:56.028+01:002012-09-28T00:09:56.028+01:00What an excellent comment from onethoughtfulwoman....What an excellent comment from onethoughtfulwoman. It is so easy when you have a chronic condition to feel as you do, the frustration, the sense of deep loss on so many levels, the 'why me?', the 'why can I do so little now when I could do so much?'. The fact that you never feel well, there always seems to be something else going on that makes life even harder.<br /><br />The excellent comment serves as a reminder of how special you are, how brave, strong, stubborn and most importantly how hard you fight. To do things despite what it will do to you, doing things even though you feel like death. just battling away when your body is screaming that you stop, give up, give in, let it win. Roll over.<br /><br />Sometimes we need to be reminded how WELL we are doing. Celebrating the fact that despite being disabled in whatever way that may be, we carry on and make the most of it. There are so many out there who would be completely unable to deal with what you put up with. You're special....xx<br /><br />Janehttps://www.blogger.com/profile/16628860673095348176noreply@blogger.comtag:blogger.com,1999:blog-769437744086749047.post-52787421000111675662012-09-27T20:10:20.304+01:002012-09-27T20:10:20.304+01:00You write so well. I find my own answer so patheti...You write so well. I find my own answer so pathetic in comparison for what can you say that you have not said.<br /> I was very slow on my run today, cursing my legs, in a small way, for not being as fast as my other running friends. Will I ever run a ten minute mile I said to myself.<br /> I have been tired since starting my new job-role, in bed by 10. I feel frustrated that I have not as much energy as I want to sometimes.<br />THEN, I read this and I feel really humble. Humble and glad that I can walk without pain, let alone run, feel tired after an honest days work, not just when trying to do basic tasks.<br />I think your blog tells us that we all take health for granted. We want perfection and for many this process of ageing and illness and disability takes a cruel blow too soon when too young. We all expect to grow old and see our body fail, that is hard enough, but when we are still reasonably young we don't expect it.<br />I do hope the meds straighten themselves out. I am at a loss for words, have no answers and feel helpless for you.<br /><br />However, from your weakness you write great strength and courage and that in itself is your legacy. You body may be failing you but your hands still type and your mind is still strong.<br />Keep going!!onethoughtfulwomanhttps://www.blogger.com/profile/17536015735054988086noreply@blogger.com